Download e-book for kindle: Beyond Regulations: Ethics in Human Subjects Research by Nancy M. P. King, Gail E. Henderson, Jane Stein


Across a wide diversity of disciplines--in biomedicine, the social sciences, and the humanities--researchers, students, directors, and academics more and more fight with questions of ethics in study with human matters. All study occurs in advanced social, cultural, political, and fiscal contexts; but the present principle-based learn ethics paradigm doesn't correctly account for them.
This ebook reexamines learn ethics utilizing a brand new relationships paradigm. via in-depth circumstances, commentaries, and essays, a multidisciplinary crew of students and researchers addresses knowledgeable consent, clash of curiosity, confidentiality, and different matters, contemplating questions like: What relationships should still researchers have with their matters' groups? while researchers and topics have varied perspectives approximately examine, who must have regulate? How may still relationships among funders and researchers have an effect on learn layout? Can learn be so most likely important that its value outweighs the pursuits of topics? interpreting the relationships among researchers and matters, groups, funders, and institutions--including concerns of authority and voice--can facilitate human topics learn that's morally delicate and liable in addition to scientifically fruitful.

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Extra info for Beyond Regulations: Ethics in Human Subjects Research (Studies in Social Medicine)

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Working in a rural area of Mexico, a social scientist was involved in a project that contained both research and educational interventions. " l 7 Her example was a workshop on the subject of women's sexual pleasure. Feminist ideas and attitudes were presented to the assembled group of rural, uneducated women. But these women cannot be isolated from their everyday life: their husbands, their mothers-in-law, their community. The researchers believe it is frustrating for women attending the workshop to be exposed to feminist ideals that they cannot act on within the traditional framework of their daily lives.

13 This poses the intriguing question of whether obtaining confidential medical information about patients and making a subsequent unannounced visit to the patients' homes can be ethically justified when the potential health benefits to the subjects themselves are substantial. '* When she was studying to be a social science researcher, ethics was taught in terms of preserving anonymity or confidentiality of subjects; the rule that subjects should not be paid (although now in social science research, subjects are being paid); and the dictate that social scientists should not make value judgments.

Another complaint about the multi-institutional consent forms imposed from the outside is that the facts presented about risks are global data rather than those pertaining specifically to individual clinics. An example is the figure cited for risk of perforation from an intrauterine device (IUD). At this institution, there have been only two perforations in the entire history of the clinic, but worldwide data show a considerably higher incidence. This is an example of a procedural point: it is entirely appropriate to state the risks and benefits of research maneuvers in the statistical terms that subjects in this clinic actually face.

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Beyond Regulations: Ethics in Human Subjects Research (Studies in Social Medicine) by Nancy M. P. King, Gail E. Henderson, Jane Stein


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